acupuncture- quite weird!

Had a good day today! Steroids kicked in, walked without using my stick most of day wooo woooo! And i did my first bit of actual designing today! I moved from buying to design about 8 months ago, and I have just been doing admin stuff. I am now actually doing my bit of design, we shall see how it goes and if it was the right move! I'm not mega happy, bit scruffy but let me know your thoughts!

These are meant to be back pockets on jeans with Butterfly applique! They need to be better but not bad for a first attempt!

I also had some more acupuncture! This was the first time I've seen what the needles looked like as i got the boy to take pics! I always thought they would be bigger and look less like odd old fashioned needles! It does work though and since I've been having it my back pain has virtually disappeared! So much than taking more meds, I swear I would rattle if people shook me!

Apparently my tattoo works as a good starting point for my physio and where he puts the needles!

Tomorrow will be the first day I have done exercise for ages! Going to aqua aerobics which will be cool. Will let you know how I do tomorrow! xx

I'm back in the game!

Thank goodness for steroids! This weekend has been fab!
Friday night we went out for a friends birthday, had cocktails and a giggle!

Cocktails in buckets yum!

Me, Laur & Shelley

Ant & Si

Saturday we went to the pub for another friends birthday, non alcoholic drinks but lots of giggles

Me and the gorgeous boy

Sarah Justine and me

Today we went to the park, did the Winnie the Pooh trail

 and practiced setting up our tent for big chill! It's really silly but steroids lift me so much! I've walked everywhere (sometimes without my stick!) been a really happy girl and I just generally on top of the world!! woo hoo for meds!!!

woo hoo the fug will be over soon!

I'm getting steroids today! I know I shouldn't get so excited, but my walking has been so pants of late and I am sooooo tired all the time steroids will help massively!

I really find that while I'm am off the meds for baby making practice, steroids are the only thing I can take that makes me back to normal.

I will probably be updating this on a steroids buzz for the next few days so I apologise in advance for any rambling!
Also to cheer myself up I bought new shoes!! Once the steroids kick I shall be walking in pretty heels again!

being a bit wobbily does have advantages!!

The whole rubbish week so far has been boosted by the fact that we are going to the big chill festival! We have 2 4 1 tickets, disabled camping and it will be fun! First festival since being told I have mystery s and I'm sooooooooooooooo looking forward to it!!! xxx


Now to find my festival fashion......

What's it all about?

I've not been at work for the past two days cause the Mystery S has decided to play up. Nice. I'm exhausted, my legs feel like someone has tightened all the muscles with a wind up key, my eye aches (weird to describe but I get a dull ache in my eye and feel it would be better if I could just take it out!) and I keep getting this weird kind of claw look to my hand if I use a computer mouse to much.
I spoke to my MS Nurse this morning and she's going to speak to my Neurologist on Thursday to see if I can have Steroids. In the mean time, I have to stay put and rest like a good girl. BUT IT'S BORING!!!!!!!!!!!!!!!!!
I find it impossible to sit still, relaxing is not in my vocab unless it involves a facial or a massage.
I know people that would love to be ordered to rest, but how can you rest when you can see bits of housework that need doing?
Maybe I'll start adding net to an other of my 50's style dresses? But then that will probably bring on the claw. sdcljahdvcilahdcvlonhdlv jbn! That's how I feel!
And I'm inflicting it on the poor readers of this. Sorry guys xxxx

AAAgggghhhhh

I've just written a whole post about my weekend and the silly computer crashed!!!!!!!

OK so start again!

On Saturday we were due to be going to our friends for a BBQ to celebrate their engagement. As we live in North London and Di & Josh live South East, we knew this was going to be a mission as my legs have been poop all week. So off we set, wheelchair in toe (hate hate HATE that thing!) and full of high hopes for the day!
Unfortunately, by the time we got to London bridge, the BBQ had been cancelled as Di was poorly!

Ant & Kels disappointed faces

As we had come across London and Greg's little boy was really hungry, we decided to make the most of the day and find a place for food and drinks!

As I haven't been to South London for ages I decided to be a bit of a tourist!

Not sure what this is but I liked it!

Top of St Paul's

The Globe

After finding a good park, we settled down to an afternoon of Football, Piggy in the middle and Champagne drinking (sorry Di & Josh we will buy you some more!)

Me & KJ

Kel tackles Gregg!

We also found a fun use for the silly chair! Playing tip up and seeing how close we could get to the floor was fun! Joe loved it! I think other people in the park thought we were weird!

I was also really chuffed with the present Kels bought me!

There is a bit of me that has always wanted to be a 50's house wife: baking cakes, making clothes and giving my friends some home made pressies! Kels has got me one step closer to this with this gorgeous book! I hope all my friends are ready for gifts of egg cosies and appliqued aprons!

The picture below sums up how I felt at the end of the day

Its days like today that I really wish I didn't have silly Mystery S, and that I could run around, play football and not have to sit in a silly chair to get around on bad days. But as much as I hate it, I also have to be thankful that it's not all bad! I have fab friends who buy me AMAZING presents and I still have a laugh!

xxx

I've been missing

for a few days from here. Partly because we have been super busy and partly because I have been so rubbish!
My legs have just been weak and rubbish and my brain too tired to do anything!
Sorry to moan and be a grump, promise tomorrow I will be back to smiley me! xxx

mmmmm massage

Windsor Castle

Had a lovely Anniversary weekend! Hotel was pretty, massage was AMAZING and my husband is wonderful! Can't believe it's been two years! It's gone so quickly! It'll be 5 years before I know it!

Attached are some pics! xx

Sorry not written much today, massages are exhausting!

Ants amazing pudding!

good day sunshine!

What a wonderful day! Spent the day with my friend Di and my gorgeous god daughter Ella! We went to the park, had a picnic, came back ate ice Lolly's and now my gorgeous husband is making us yummy dinner! We have the wine chilling, strawberry's and ice cream for desert and then I shall have a well earned rest! 17 month year old are tiring! also pushing yourself in a wheelchair on uneven ground cause your legs are being rubbish in the heat is also hard! Never mind! Tomorrow we are off for a spa weekend in Windsor to relax and enjoy our wedding anniversary!

Tomorrow tomorrow I love you tomorrow

Really looking forward to tomorrow. One of my besest friends is coming round tomorrow with my gorgeous god daughter! We are going for a picnic and talking about Di's wedding plans! It will make up for the rubbishness of today. Got to work, fell over and ripped my jeans. Went for lunch, stumbeled, hurt my ankle. Got home from work, had a driving lesson and had to give up after half an hour cause my stupid legs weren't working and I didn't feel in control. Grrrrr! I hate days like these!!!!!! Hopefully a good rest tonight and relaxing day tomorrow will sort it out and I will be able to enjoy our wedding anniversary treat!!!

I'm not drunk...I've got MS: Just a girl

I'm not drunk...I've got MS: Just a girl

Just a girl

and this girl likes dresses, champagne, wedding shopping and being with friends! So today was a good day!

Laura & flowers!

Went to a wedding event at the Coast store on Regent Street with my friend Laura who is getting married in December and had a fab time! Laura drove which was a godsend, we managed close parking and the staff in Coast were so helpful! Had to take my chair as legs were a bit wobbly today. The Coast store is tiny and on three floors so getting around was not gonna be easy! Silly me didn't take my stick but the girls at Coast were so helpful! When they said it might be difficult to get around, one of them said "ooh hang on a tick" ran downstairs and came back up with a crutch! One of the guys that works there had hurt his leg recently and volunteered his stick for me! Now that is customer service! We were given champagne (with regular top up if wanted!) yummy nibbles and a fab goodie bag with nail varnish and a gorgeous bag! They had someone from a wedding cake company there who had the most beautiful and yummy cakes on offer. The chocolate brownie one was heaven!
I also found some dresses that my other friend who is getting married soon might consider for our bridesmaid dresses so was all in all a successful evening!

Yummy cake

Below are some pics so you can see me trying to model the dresses! I must say, I looked lovely with my gladiator sandals poking out! Thankfully I managed to roll my leggings up so they couldn't be seen. That would have looked classy!

Excuse the bad quality images, I phones aren't great cameras!

Mr Blue Sky

Husband boy had a fab idea earlier (it's amazing the way his mind wanders on days he's working from home) about a charity event we could do to raise money for MS research. He wants to call it "a mile in my shoes" and is basing it around a race for life theory. What he wants is for MS people to walk, run, skip, jump etc a mile and those without MS to do the same mile using the walking method someone with MS uses everyday so wheelchair or walking stick. I think it's a fab idea cause non MS'ers can get sponsored to use a self propelled chair (harder than it looks) and people with MS get sponsored for walking. It still needs lots of ironing out but what do people think? xxx

I'm not a mardy bum

I'm just exhausted!! Today has been one of those days where all I seem fit for is sleeping. It's such a weird thing and really hard to describe to people because my tired is not your tired. I used to get tired on the weekends I'd been out friday, saturday and then finishing it off in the pub on sunday. But this tired is different. One of the joys of MS is fatigue. I hate saying I'm fatigued cause it makes me sound quite stuck up " no I'm not tired I'm fatigued" but it is the best way to describe it. It comes on for no reason at all. I had a good 8 hours sleep last night so it's not lack of sleep. Ant cooked our 3 course lunch today so it wasn't that. I did my bits of housework, but again it's not too stressful. It just comes on for no reason. I worry that people think I am lazy but it has a weird effect on my body. My legs going is the main thing but I also get this weird thing with my eyes where they go blurry and won't focus that quickly, it's a bit like the when you have been out in the sun all day and you forgot your sunglasses so have been squinting, does that make sense?
Our friend has been round today as he is moving to the states on wednesday and as much as I want to spend loads of time with him, I slept for 2 hours while he was here! Makes me feel so rude!

I think part of it comes from the emotional strain i've been under with my nan. I tend to find when my brain is dealing with hard things my body goes into shut down. I really wish the two of them would work together sometimes rather than always annoying each other. It always happens when I am going out. My brains says " really looking forward to tonight" and starts planning outfits whilst my body says "i don't think so brain, I am going to make the legs wobbily so those heels are out of picture. Just be boring and wear some nice ballet pumps. On second thoughts why not just stay in?" it drives me mad!!
I'm really hoping they can start working together this week, especially tuesday as I am having a day out with my friend Laura. Its a bridal evening so we can get some ideas for he wedding in december. I am also doing some research for my friend Di who is starting to plan hers after her Fiance proposed last week! I've also got to get the legs and brain working for that as she has asked me to be a bridesmaid and I want to be able to walk behind her without having a stick! xxx

Grandma I love you grandma I dooooo

Went to see my nana today and it was so difficult. She' always been such a positive force in my life and to see her in the state she is in so hard. It prompted the discusion between me and hubbie as to wether it would be better to be in the position of nana and just be withdrawn into your own little world or to loose the use of your body and just be laid there fully aware of what is going on but unable to move like you used to. It's a tough one as I worry that due to the ms, especially when my legs are being uber rubbish, that I will end up imobile and Ant will have to do everything for me. I just have to switch my brain round though and be positive. They are, all be it slowly, making advaces in treatment, and I still have a fab life so need to enjoy it rather than mope.
So, in light of my more positive outlook, I shall talk about the fab things that have happened so far this weekend! On Friday to cheer dad up, when we got back to wilts went out for a super yummy dinner at le Flambe. The food there is so delicious that even after two course you always have room for pudding! I shall try to add picks, but am updating from I phone so not sure if I can! We are now at our friends house just about to have some yummy food (and I have had a few vodka and cokes so a bit giggly!) and my friends are great to take my mind off stuff! Will post again tomorrow!

I like driving in my (instrustors) car!

I have decided to learn to drive to help give me a bit more Independence and to tick off one of the things on my list of things to do before I'm 30.
I love it!! I have a few issues with the reactions of my feet but my instructor is brilliant and is so supportive of me! I'm finally getting used to driving and learning about reactions and what I should be looking out for so will keep everyone posted on how it is going!

Got a tricky weekend ahead, seeing my nan and my sisters have said it's really draining so am going to have a nap and get ready xx

it's finger popping 24 hour shopping in rapture

Today has been a day of ups and downs
Downs cause my legs we useless most of the day and we didn't win at bingo (sad that we go I know, but our winnings over April & May paid for our holiday in June!) and ups cause I had some brilliant news from my friend! (The title of this post is for her). I really can't put into words how happy for her I am!!
Also on the up side of things today was my walking this eve. On our way back from bingo I walked most of the way home without my stick! This is brilliant for me as I rely on that thing too much! I'm now starting to take positive steps to not need it any more! I will keep this updated with progress! Also found a really cool blog today the link of which is below.
Ive also thought of some new things to add to this blog which will be coming soon!