Amazing week!

Hi all!
Just had to write and say what a fab week/end i've had recently!

Last weekend was ace! We took our daughter into town on saturday for a nice walk along embankment. Was a bit of a crummy day weatherwise but me wise was ace! We took my wheelchair as the legs have not been great but I was able to get myself up & down stairs and I walked for ages pushing my chair which was ace!! EC loved it too, although I think she got a bit bored of mummy & daddy stopping to point out attractions!

this has just been a good week in general for my legs, i've driven and walked quite a lot which is a vast improvement!

Here's hoping it gets even better next week xxx

sooooo what's happened since my last post.......

Wll, quite a bit really!

1. I became a year older. I am now longer 30 but 30something.... it's a bit odd being this old. I often still think of myself as a 20something and I still wish I had that carefree life with legs that work and that feeling that I can do anything whenever I want.

2. We are trying to move house at the moment and unfortunately the sale of our place fell through. This is so annoying as I'd already got myself living in the house we've had an offer accepted on and now I think it's going to fall through :0(
I shouldn't complain too much. We live in a nice flat, that in reality, is plenty big enough for us, I just really have my heart set on a move to a house with a garden and more storage space. I want to be able to keep all of our babys newborn stuff, and for that we need a loft. I also want a garden. I think, that by having a space that it ours, I will be able to sit outside, soak up the vitamin D and I hope that might help the MS a bit. I also feel that having stairs will be great for me as I will be using different muscles in my legs and building up my strength. Anyone that reads this, please keep your fingers crossed for me that someone will buy our flat and we can move!

3. The last few days have seen me get a bit more physical. I started on Tysabri in January and I think it's helping me. As a result of this I'm now trying hard to do more to push myself and get moving again. I've been doing more driving, which is helping my confidense and getting me out more. I've also been doing little walks with my daughter and her pushchair. This might sound sillt to my more abled bodied readers, but I never thought life would be so blooming hard when I was growing up. I just assumed that i'd have a baby and be able to do lots of running around with them, dancing that sort of stuff. Now the thought of being able to do even hopskotch with them seems like a dream!
I think I'm going through a bit of a "why me!!!" thing at the moment. I'm pissed off that I have this stupid illness, feeling very sorry for myself & really guilty that my husband has to put up with this and my daughter might not be able to do some of the things I loved doing with my mum.

So to get me out of this grump I'm doing something crazy!!!!

I really wanted to do this before I was told I had mystery S, but just didnt think i'd get the oppertunity. Then las month, the MS Trust newsletter came through the door and said I could do one to raise money for them.

So what am I doing?

Skydiving!!! http://www.mstrust.org.uk/fundraising/events/parachuting/jumpinjune.jsp

The MS trust do a "jump in June" fundraiser and I'm going to be jumping out of a plane to raise money!!
My friends have been so generous with sponsorship but every bit helps!

If you feel like helping me raise money, please donate to the link below



Thank you!
Till next time xxxxx

getting into bad old habbits!

I've been a lazy blogger again, bad me! A lot of it isn't my fault, busy mum, crazy tired all the time and think I may be having a b it of a relapse :0(

But positive things!!

My baby girl is 6 months old today! It's gone so quickly its crazy! I love that she has a proper personality now, giggles loads and is super smiley, but I really cant believe how quickly this time has gone! It only seems like yesterday that we bought home the tiny little thing who was so delicate and didn't fit into normal sized newborn stuff! Now she's a big girl, in proper grown up girl clothes, in her own cot and really strong (as the poor cats have come to realise with the fur grabbing!)!
Shes also eating solids now which is great fun! We're going to a wedding at the weekend (will post pics of my dress, its gorgeous!) and shes going to have pots of food rather than mummy's homemade mush! That will be fun, as I'm not sure how her feeding will work with our eating too!

Ive noticed this week how much I don't worry about my appearance so much since having Ellie. Its only because we are going to this wedding that I've thought "hmmm these nails are messy, need sorting. These eyebrows are crazy must get them threaded. Yep hair is crazy, need a cut and colour". I think by Saturday when I'm all dressed up, my husband will think he's gone back in time!

Ive also been trying out a new thing to see if it helps my core muscles. My sister gave me her slender tone belt as I was moaning about mummy tummy and as well as helping improve my tum a bit, its had a brilliant effect on my back pain! I think, using that, combined with exercise might be what I have been looking for the past 3 years!!

Its the 5 year anniversary of being diagnosed this week. Its weird when I think about it, and I'm a bit teary writing this. This time 6 years ago, I was "normal" Em, running around, being silly, not scared of doing anything and not worrying about being able to do simple things. I had so much ambition and loads of plans about what I was going to do. A year later it all came crashing down (along with my legs which decided to give way!). I try, really really hard, to be normal, but sometimes its impossible. I cant complain too much though. The day before I was diagnosed, my father in law was given the all clear from cancer, and that was amazing, although my news was shit I was over the moon for his news. And although my legs are crap, I'm still here, have an amazing husband, daughter, family & friends. Life's hard, but I think its made me stronger.

Ohhhhhh!! Enough of the "poor me" rubbish!
Its my birthday on Sunday and I'm really looking forward to seeing my mates! Also on Monday I'm getting a tattoo done! I had two stars done on my back a month before I got married, one for my husband, one for me. Now I'm getting Ellie added to my family of stars! xxxxxx

The wonderful thing about Tysaberi, is Tysaberi's a wonderful thing

Since my post last week things have been very good!
I had my second Tysaberi infusion and I'm feeling amazing!!
This medication is not meant to improve my MS, only reduce my relapse rate, but so far its making me feel brilliant. I am able to do things with my legs that I've not been able to do for ages (that sounds weird (and possibly a bit rude!) but I'll explain). I've found for the past few years that I have been unable to move my legs without man handling them, so crossing my legs meant grabbing my knee and putting it on top of the other, getting in and out of the shower meant lifting my legs over the bath, getting in and out of the car the same thing (you get the picture). But last night I was able to lift my legs to cross them, get in the lotus position and many others! I think my husband was getting a bit bored after the 30th time of me going"look baby, look! I can do this!!!!!!" but he's very happy. Another thing I've noticed is that I'm not dragging my feet as much either which is great.
Like I said before, I'm not sure if its the meds or if its a combination of being on a good medication encouraging me to do my exercises and just my general mind set of being positive now I'm back on meds, but I feel brilliant & that life is back on track now!!
I think a huge sign off difference is my reaction to the weather. Normally snow is a nightmare for me with the cold, but I really feel OK.
Buying a pretty new dress in my pre baby size for a friends wedding might also have helped!! I'll post pics of that when we've been!! xxxxxx

I am a bad bad bad blogger!!

OK, so what has happened since my last post? Loads!!!!
My lack of posting is down to many reasons. If we start in June from my last post...........

My gorgeous little baby decided that they wanted to try and make an early appearance! Because of my low amniotic fluid levels and a couple of scares with babies growth I had to go to hospital every other day for scans of the babies heart rate and in to see the consultant once a week to decide on the best plan of action!!
This was a very scary time and there were a few occasions where we thought our little love was going to be a few months early!
Thankfully we ended up seeing a different consultant who was amazing and stopped our fears.
Eventually, 3 weeks early I gave birth to a beautiful little girl!

Ellie

She was so tiny when she was born, a teensy 5lbs 12oz and felt so fragile! Its was such a change in lifestyle when we got her home! We knew it would be, but I don't think either myself or my husband realised how different our lives would be!!

Those early days were a massive learning curve, from feeding and the times she wanted food, nappy changing (especially the early poo explosions!), bath time, sleeping, playing, carrying etc etc so much to learn!! Its been good fun though!

And now, the tiny person, who wasn't even half the size of her moses basket when we brought her home, is big enough to go into her own room, can turn over, chatters away in cute baby noises, sleeps through the night and is learning to eat solids!!!

Everything flys by so quickly!!!

And now she's bigger, we have decided that little girls have far too much stuff and we need to buy a bigger house!

I think my husband and I are incapable of just relaxing, we are always doing something!

I need to write about the trials of being an MS mummy, but that will be for another post :0)

Now I've settled into mummyhood I am going to keep up with this blog and make sure that I do a once a week update at least!! xxxx